I didn't realize how long it's been since I last posted! Just to catch you all up on whats been going on!
We had a long weekend this past weekend. Mia's counts dropped to low so we had to put our life on hold just for a few days. Her counts have been level for quite some time so when I got the news that her counts were too low, we were pretty bummed. So we decided to have a movie night! The girls picked two movies; Annie and Pee Wee's playhouse christmas (hahahaha)! It was a great night! By the end of the weekend you could see that the girls were getting restless. By Monday morning she was fabulous! Her counts were back were there were the week before! YAY! George took Mia so I had the other two to myself and it was great. We were just plain lazy the whole day. She didn't get to see Haley Monday but she did come tuesday and today. Tuesday Haley got a spinal treatment and did a remarkable job of holding it together. She was actually smiling which was amazing! Her smile will light up a dark night. It seems like forever since I seen Haley smile. Today was no different! The two of them relaxed on the couch with Ava and watched some little enstiens! Haley was there for a short time which made her even happier. The nurses and Doctors believe that Mia is a ray of sunshine, a breath of fresh air and an awesome friend. She has managed to melt every heart in that office with her courageous outlook on the treatment. We are almost done with our first cycle, then onto our next phase. It's been altered slightly but a bit more manageable.
Our next phase, Mia will go to the office (on Monday's to be with Haley) and recieve a shot and do blood work. Two days a week Mia will be getting a VNA to come show us/administer the shots at home. Rini (Ree-knee) is one of her nurses at Dr. Joes and the office is going to arrange it that she will be Mia's nurse. They both are thrilled about getting to see each other more. We will have that schedule for 47 weeks to complete the 52 week schedule. Hopefully after this phase we will be able to get the port removed and return my bean to her peachy self.
George and I have had such a great experience with Dr. Joe and his staff that I could never imagine going through it with another doctor. We have a fun filled next few weeks and can't wait to share some stories with you all! Also, We got word from the Dream Come True foundation that they will be covering our trip to Disney in August and have even went and planned some awesome things. We get to check out an awesome "wish" resort called Give Kids The World. I suggest you check it out and be jealous! We will be staying within the Disney resorts but plan so many special occasions for the girls!
It is time for bed now, I talked myself into exhaustion with Sue (which was well worth killing my phone battery) I will post back soon, I promise! Only 3 more treatments in the phase! bring it on!
Little Miss Sunsine that she is, deserves her own blog!
Oh me. Oh my
Wednesday, July 16, 2008
Many Hugs,
Chrissie
Posted by Mia's Mom at 9:30 PM
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